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Meet Connor Allbee

This is Connor Allbee. Connor was born September 13, 1994 in Reno, Nevada where he has lived all his life. He is the third child, and the only son born to Derek and Christy Allbee. Connor has two older sisters, Kelsey and Katie and half sister and brother Chantel and Nathan who all love him very much. When Connor was born, the family was complete.

Connor likes to camp, fish, go boating and hunting with his family. He has a very inquisitive mind and wants to know what everything is, what it does and how it works. He loves to help fix things and always tries to take charge of projects. Connor wants to learn to scuba dive.

Connor has a big treehouse, a swimming pool, an enormous yard to play in and many of the toys and games a child his age normally would have. One thing Connor has that most kids don't, and none would want, is Juvenile Neuronal Ceroid Lipofuscinosis, also known as Batten Disease.

Batten disease is a brutal, debilitating disease that cripples and tortures it's young victims before it kills them See the list at right to find out how he and other Batten children are afftected. Use the links at left to learn more about Connor and Batten Disease.

 

Connors Battle...

...Because every child deserves a chance at life.

Effects On Connor:

Currently Connor is totally blind

Doctors are controlling his seizures with medication

Connors' mental faculties and memory are diminishing

In the future dementia will set in as will paralysis and loss of normal functions

Eventually he will be bedridden, have to be fed by feeding tubes and then die.