Connors Battle                .

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Connors Wish

This is the day... 

we all got to forget I was sick.

Special thanks from the Allbee Family to

and Michael Hohl RV Center

for making Connors wish come true.

This is Connor Allbee. A normal happy 11 year old boy, except for one thing. Connor has been diagnosed with JNCL* or Juvenile Batten Disease. Batten disease is a brutal, debilitating disease that cripples and tortures it's young victims before it kills them  Connor has the following in his future:

 

  • Currently he is totally blind

  • Doctors are controlling his seizures through medication

  • Dementia will set in

  • Paralysis and loss of normal functions

  • Feeding tubes

  • Death

*Juvenile Neuronal Ceroid Lipofuscinosis

 

A Little About Connor 

  • Connor was born Sept. 13, 1994.

  • Connor was the third of three children, and the only boy born to Derek and Christy Allbee

  • Connor was born and lives  in Reno, Nevada

  • Connor loves to go camping and fishing with his family.

  • Connor has a sister Kelsey 18, and another sister Katie, 16, who love him very much.

  • Connor has a cat named Coconut and another named Joe

  • Connor wants to be a fireman when he grows up. 

 

 

Connors Battle Fund

Care and treatment for Connor is getting more and more expensive, and will continue to do so as long as he lives. Donations to help pay for his medical costs and needs can be made at any Bank of America branch to:

Bank of America Nevada acct. #     4962498950.

 

 

What is the prognosis?

Over time, affected children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten disease become blind, bedridden, and demented. Batten disease is always fatal. Usually by the late teens or twenties.

 

Click Here For More About Batten Disease

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